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Widening the Lens: Using Arts in ELSI Research
April 9, 12:00 pm - 1:00 pm
Join us on Friday, April 9, 2021, for the next ELSI Friday Forum: Widening the Lens: Using Arts in ELSI Research.
Using the arts in ELSI research can offer new insights and opportunities to engage with diverse participants in genomic research. ELSI scholars have creatively incorporated comics and whiteboard video to educate participants about issues such as consent and return of results and to convey concepts of biorepository research. This session will begin with a brief overview of how the arts can be employed to bolster public access and understanding of research studies and findings. This will be followed by presentations of two projects that utilized arts in ELSI research. The first project will focus on storytelling in genomic spaces and the use of community engagement and public deliberation to develop a responsive consent process for pediatric biobanks. The second project will focus on how a theoretical model “entertainment-education” (E-E) can explain why the use of artistic methods may be more effective for improving knowledge of patients and research participants. Join us for this panel discussion of ELSI collaboration with the arts.
Panelist: Sydney Cheek-O’Donnell, PhD (University of Utah)
Panelist: Erin Rothwell, PhD (University of Utah)
Panelist: Erin Talati Paquette, MD, JD (Northwestern University)
Moderator: Maya Sabatello, LLB, PhD (Columbia University)
Closed captioning and/or transcripts will be provided for live and recorded events.
By registering for an ELSIhub event, attendees agree to abide by the ELSIhub Code of Conduct: https://elsihub.org/news/code-conduct
ELSI Friday Forum is a monthly one-hour seminar series featuring topics on the ethical, legal, and social implications (ELSI) of genetics and genomics research. Join us from 12:00-1:00 pm ET / 9:00-10:00 am PT on the second Friday of each month for talks and panels on a broad array of issues, explored through an ELSI lens.
Each hour-long forum will be immediately followed by a half-hour informal networking session for audience members who would like to continue the discussion. A zoom link to the networking session will be provided in the Zoom Chat before the end of each forum and emailed to all registrants.
Each forum will end with a Q&A with the audience and speakers: please bring your questions, expertise, and opinions to the debate! For those who cannot attend the live event, each session will be recorded and archived on the ELSIhub Video page.